Back What Stars Are Made Of Save as PDF
Contents ( 63)
  1. An Anti-Grinch Gets Excited
  2. My Best Friend Is a Room
  3. Home Is Where the Bach Is
  4. X’s and O’s
  5. Better Than a Puppy
  6. My Sister Is Sick and It’s a Good Thing
  7. A Shot a Day Makes the Doctor Say Yay
  8. Growth Hormone and Marmalade
  9. Silent Questions
  10. No Payne, No Gain
  11. How Not to Make Friends
  12. Art Show
  13. Seventh-Grade Writing
  14. Beach Bum
  15. First Draft
  16. The Doctor That Isn’t Mine
  17. Audacity
  18. Friends and Consequences
  19. Some Dead White Dude
  20. How Grown-Ups Listen
  21. Second Draft
  22. Houston, We Have a Problem
  23. What’s in a Name?
  24. Textbook People’s People
  25. Twitterpated
  26. Out Loud
  27. Thanksgiving Break
  28. Silence
  29. Sound
  30. Eleanor Roosevelt
  31. Gray Walls and Gas Masks
  32. Long Distance
  33. Doctor Who Was Right
  34. The Impossible Dream
  35. A New Doctor
  36. NLD
  37. There’s a Monster at the End of This Brain
  38. Master Plan
  39. The Day
  40. The Night
  41. Hospital
  42. Waiting
  43. Big Doctor Words
  44. Doctor Who Was Wrong
  45. Septal Defect
  46. Waiting Again
  47. A Glass Box
  48. My Body Versus Me
  49. Home Is Where the Heart Is
  50. My People’s People
  51. First Period
  52. She’s Got the Whole World in Her Head
  53. What Brains Are Made Of
  54. One Month Later
  55. When I Showed My Family the Email
  56. On an Ordinary Sunday
  57. What You Do with History
  58. Seventh/Eighth-Grade Division Winner of the Smithsonian Women in STEM Contest
  59. Acknowledgments
  60. CHAPTER ONE
  61. CHAPTER TWO
  62. About the Author
  63. Contents

Nonny smiled, then laid her head back on the couch and closed her eyes. Mom gave her That Look, that Too Precious to Handle look, and I admit it, it was actually nice to see that none of us ever grew out of being her little kids, no matter how old or married or pregnant we got.

How pregnant Nonny got, rather. That one would only ever be her.

There’s an app on my phone called Marco Polo that Mom let me download especially so I can send video messages to Thomas, and I sent one then. “She’s here!” I said. “She made it! Everyone say hi to new dad Thomas!”

He sent a message right back, his hard hat on and his face sweaty. “My main people! Aw, I miss you guys. Thanks for the chat, Lobster. Keep me updated on you-know-who, mmkay?”

(Yeah, he calls me Lobster. Let’s just say the first time he came to meet the family we went out to a seafood restaurant and there was an incident involving my dinner still having eyeballs.)

I looked at my sister while her eyes were closed. She didn’t look pregnant. Except for the glow. I decided I should watch her very carefully in the next few months. Maybe I should document the experience. Track when her ankles started swelling. Track how big her belly slowly grew. Track when the morning sickness went away. Go with her to doctor’s visits, if she’d let me.

Otherwise, I’d never know what it was like.

A Shot a Day Makes the Doctor Say Yay

Not very many twelve-year-old girls have to give themselves shots every day, but really it’s not bad at all.

Sometimes Turner syndrome messes with your heart. (It messed with mine pretty good.) Sometimes Turner syndrome messes with your thyroid or your kidneys. (Mine? So far, so good.) But there are two things that Turner syndrome always does:

  1. Turner syndrome means you can’t have babies of your own. Nonny’s taking care of that one for our family, and I don’t even need to think about that right now anyway. Right?
  2. Turner syndrome means you don’t grow to a normal height. Not on your own, anyway. But there’s special medicine called growth hormone and if you give yourself a shot of that stuff every day for a while, you can do a pretty fine job with the whole growing thing. I’m already over five feet tall. Without the shots I’d barely pass four.

I’m pretty lucky, actually. Since my doctors figured out about my Turner syndrome stuff soon after I was born, that meant I got to start shots early and do plenty of growing. Sometimes girls with Turner syndrome don’t find out until it’s too late for the shots.

The needles don’t scare me. They’re small. My bedtime supplies aren’t that different from everyone else’s. Toothbrush, pajamas, needle. Check, check, check.

Mom used to give me the shots. Then I told her I wanted to learn how to do it on my own, and after she taught me, I did it in one try.